{"id":17845,"date":"2024-12-05T16:34:04","date_gmt":"2024-12-05T15:34:04","guid":{"rendered":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/?p=17845"},"modified":"2024-12-05T16:34:05","modified_gmt":"2024-12-05T15:34:05","slug":"juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela","status":"publish","type":"post","link":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/","title":{"rendered":"Juan Carlos Unzu\u00e9 i la Dra. M\u00f2nica Povedano demanen un desenvolupament \u00e0gil de la Llei ELA"},"content":{"rendered":"\n<p>Que tota persona, organitzaci\u00f3 o entitat amb capacitat per accelerar el desplegament pr\u00e0ctic de la Llei ELA ho faci. Aquesta va ser una de les principals conclusions de l\u2019entrevista que l\u2019exfutbolista i la cap de la Unitat Funcional de Malaltia de Motoneurona (UFMM) del Servei de Neurologia de l\u2019Hospital de Bellvitge van concedir a l\u2019informatiu Catalunya Nit de Catalunya R\u00e0dio, que presenta Manel Alias, el passat 4 de desembre.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" width=\"506\" height=\"282\" src=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-content\/uploads\/sites\/2\/2024\/12\/catalunya_nit.png\" alt=\"\" class=\"wp-image-17846\"\/><\/figure>\n\n\n\n<p>Tal i com va explicar la Dra. Povedano, al dia seg\u00fcent de la publicaci\u00f3 de la Llei ELA en el BOE, el passat 31 d\u2019octubre, la centraleta de la unitat treia fum amb les trucades de moltes persones afectades de la malaltia per saber com podrien acollir-se a&nbsp; la nova norma. \u201c\u00c9s una llei aprovada per unanimitat, que preveu ajudes per a la recerca i que ha de fer possible formar cuidadors professionals el m\u00e9s aviat possible\u201d, afirma la Dra. Povedano.<\/p>\n\n\n\n<p>Ambd\u00f3s van coincidir en subratllar que per davant queda, per a tots, molt feina per fer, i en aquest sentit Unzu\u00e9 va afirmar que \u201chem posat la base perqu\u00e8 tot all\u00f2 necessari pugui arribar i seguirem molt atents\u201d. L\u2019exporter i exentrenador va remarcar que la llei necessita ara de dotaci\u00f3 pressupost\u00e0ria per exemple per formar cuidadors, ja que es tracta d\u2019una malaltia molt cara per a les fam\u00edlies.<\/p>\n\n\n\n<p>En el decurs de l\u2019entrevista la Dra. Povedano va destacar tamb\u00e9 que la recerca continua avan\u00e7ant gr\u00e0cies a plataformes internacionals on sumen forces centres i investigadors, \u201cperqu\u00e8 nom\u00e9s avan\u00e7arem en el coneixement de la malaltia si treballem en equip, investigadors, pacients i professionals assistencials\u201d. Va afegir que els pacients amb ELA tenen cada vegada una superviv\u00e8ncia m\u00e9s llarga gr\u00e0cies a la precocitat en l\u2019abordatge dels s\u00edmptomes, tot i que l\u2019ELA \u00e9s una malaltia molt heterog\u00e8nia a tots els nivells.<\/p>\n\n\n\n<p>Podeu escolta l\u2019entrevista \u00edntegra <a href=\"https:\/\/www.3cat.cat\/3cat\/unzue-i-la-seva-doctora-reclamen-que-saglitzi-laplicacio-de-la-llei-ela\/audio\/1226868\/\">en aquest enlla\u00e7<\/a><\/p>\n<div class=\"sharedaddy sd-sharing-enabled\"><div class=\"robots-nocontent sd-block sd-social sd-social-icon sd-sharing\"><h3 class=\"sd-title\">Comparteix aix\u00f2:<\/h3><div class=\"sd-content\"><ul><li class=\"share-facebook\"><a rel=\"nofollow\" data-shared=\"sharing-facebook-17845\" class=\"share-facebook sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=facebook\" target=\"_blank\" title=\"Comparteix al Facebook\"><span><\/span><span class=\"sharing-screen-reader-text\">Comparteix al Facebook (Opens in new window)<\/span><\/a><\/li><li class=\"share-twitter\"><a rel=\"nofollow\" data-shared=\"sharing-twitter-17845\" class=\"share-twitter sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=twitter\" target=\"_blank\" title=\"Feu clic per compartir al Twitter\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per compartir al Twitter (Opens in new window)<\/span><\/a><\/li><li class=\"share-google-plus-1\"><a rel=\"nofollow\" data-shared=\"sharing-google-17845\" class=\"share-google-plus-1 sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=google-plus-1\" target=\"_blank\" title=\"Feu clic per compartir a Google+\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per compartir a Google+ (Opens in new window)<\/span><\/a><\/li><li class=\"share-email\"><a rel=\"nofollow\" data-shared=\"\" class=\"share-email sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=email\" target=\"_blank\" title=\"Feu clic per enviar un correu electr\u00f2nic a un amic\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per enviar un correu electr\u00f2nic a un amic (Opens in new window)<\/span><\/a><\/li><li class=\"share-print\"><a rel=\"nofollow\" data-shared=\"\" class=\"share-print sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/\" target=\"_blank\" title=\"Feu clic per imprimir\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per imprimir (Opens in new window)<\/span><\/a><\/li><li class=\"share-end\"><\/li><\/ul><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>Que tota persona, organitzaci\u00f3 o entitat amb capacitat per accelerar el desplegament pr\u00e0ctic de la Llei ELA ho faci. Aquesta va ser una de les principals conclusions de l\u2019entrevista que l\u2019exfutbolista i la cap de la Unitat Funcional de Malaltia &hellip; <a href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/\">Continua llegint <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n<div class=\"sharedaddy sd-sharing-enabled\"><div class=\"robots-nocontent sd-block sd-social sd-social-icon sd-sharing\"><h3 class=\"sd-title\">Comparteix aix\u00f2:<\/h3><div class=\"sd-content\"><ul><li class=\"share-facebook\"><a rel=\"nofollow\" data-shared=\"sharing-facebook-17845\" class=\"share-facebook sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=facebook\" target=\"_blank\" title=\"Comparteix al Facebook\"><span><\/span><span class=\"sharing-screen-reader-text\">Comparteix al Facebook (Opens in new window)<\/span><\/a><\/li><li class=\"share-twitter\"><a rel=\"nofollow\" data-shared=\"sharing-twitter-17845\" class=\"share-twitter sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=twitter\" target=\"_blank\" title=\"Feu clic per compartir al Twitter\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per compartir al Twitter (Opens in new window)<\/span><\/a><\/li><li class=\"share-google-plus-1\"><a rel=\"nofollow\" data-shared=\"sharing-google-17845\" class=\"share-google-plus-1 sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=google-plus-1\" target=\"_blank\" title=\"Feu clic per compartir a Google+\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per compartir a Google+ (Opens in new window)<\/span><\/a><\/li><li class=\"share-email\"><a rel=\"nofollow\" data-shared=\"\" class=\"share-email sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/?share=email\" target=\"_blank\" title=\"Feu clic per enviar un correu electr\u00f2nic a un amic\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per enviar un correu electr\u00f2nic a un amic (Opens in new window)<\/span><\/a><\/li><li class=\"share-print\"><a rel=\"nofollow\" data-shared=\"\" class=\"share-print sd-button share-icon no-text\" href=\"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/juan-carlos-unzue-i-la-dra-monica-povedano-demanen-un-desenvolupament-agil-de-la-llei-ela\/\" target=\"_blank\" title=\"Feu clic per imprimir\"><span><\/span><span class=\"sharing-screen-reader-text\">Feu clic per imprimir (Opens in new window)<\/span><\/a><\/li><li class=\"share-end\"><\/li><\/ul><\/div><\/div><\/div>","protected":false},"author":10,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[1],"tags":[1585,213,943],"_links":{"self":[{"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/posts\/17845"}],"collection":[{"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/users\/10"}],"replies":[{"embeddable":true,"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/comments?post=17845"}],"version-history":[{"count":1,"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/posts\/17845\/revisions"}],"predecessor-version":[{"id":17847,"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/posts\/17845\/revisions\/17847"}],"wp:attachment":[{"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/media?parent=17845"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/categories?post=17845"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/blogs.bellvitgehospital.cat\/aulaela\/wp-json\/wp\/v2\/tags?post=17845"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}